Tag Archives: tracheostomy reversal
…just came across this one, written in the bleak summer of 2012 and never posted.
Difficult to read this, it was…i have since nearly forgotten the horrors that my eyes have seen in the past 12 months alone.
THIS, I will NEVER EVER forget: the horror of BURNING ALIVE for almost five minutes while remaining fully conscious.
I went into paralytic shock and simply stared at the hungry orange flames, greedily licking my arms and reaching for my face.
My silk tee shirt melted into my chest.
My grandmother’s antique 24K gold crucifix glowed hot in the flames, presumably almost molten. I have a burn scar underneath where it hung.
Alas, it did not survive the inferno that my little body miraculously did.
I will never forget that image of a glowing tiny Jesus, helpless on the cross, looking up at me from my own chest in my burning kitchen.
“STOP, DROP, AND ROLL”, the epic drill taught to us in elementary school during the Cold War Era,
completely slipped my mind.
However, ON A POSITIVE NOTE!!! — I am delighted to say that through the use of beautiful images and positive thinking, as well as the purest love of my three year old son, William James, I have made it through another personal Hell. Through the the magickal world that is photography, painting, and digital imagery, I have crawled, bloody and charred, from the bottom of the blackest of millennial holes. AGAIN I WILL STAND IN LIGHT. Painting religiously, writing, and shooting, while exercising like a madwoman and plying myself with vegan meals and phytonutrients, I have overcome burn injuries that would frighten Freddie Krueger into submission. (I sustained third degree burns on 80% of my body above the torso, excluding, somehow, my head — and have healed 1000% following the most gruesome nightmare i ever had while awake.)
My left arm, once slated for amputation, was surgically receated in January, using flesh and skin grafts from my lower and mid-lumbar region, and I sweated through 8 months of grueling physical therapy. I graduated!
NOW: FULL ROTATION > SKIN COMPLETELY HEALED > OFF PAIN MEDS.
My melted and charred body, has somehow (!!!???) completely regenerated itself almost as if the fire itself was eons ago in a distant forest.
SO, here goes…thank God it is over. One more nightmare under my belt.
Hold on, little Susie — this old leather belt is running out of notches.
There will probably not be One More Chance.
For my life, I am eternally grateful.
Here is the BEFORE pic of my arm, post-surgery just 10 months ago.
The last four photos are the AFTER pics, now.
July 14, 2012
“I am trying to remember — one step at a time today — that the body is merely a temple for the soul. I feel that my temple has been blasted with a wrecking ball and am sick of pretending I am fine.
Everyone thinks I am such a hero, and so beautiful, and I am sorry to tell you that it is bullshit.
I am alive. That does not make me a hero.
I have been hiding in my house in the heat trying not to cry because the painkillers do not work, and posting pretty pictures to make myself happy. I stared at my ceiling fan all night in bed, sleepless, praying that the itching and the pins and needles would stop. But every time I drifted off, BAM!!! A stab here, a pinched nerve there. I got so mad, I screamed, got out of bed, threw my pillow against the wall and made a pot of coffee. Called it quits. Heroic behavior? I think not.
I am looking at a body that was once athletic and proud and is now a shriveled mass of gristle and scar tissue. How can I sit back and allow you all to shower me with accolades simply for staying alive? How can I allow you all to tell me how beautiful I am? I look in the mirror now and I want to vomit.
I think maybe I am a writer, painter and photographer because I can create a more beautiful world than the one that actually exists. I look at the photos I post and sometimes think, “Gee, I wish that was my life.” Maybe I have disassociative disorder. Maybe, as a photographer, I am merely a liar with a camera and a paintbrush. I have been told that the world I have created is indeed a beautiful one, so that leaves me to ponder further on whether or not the filter of intense physical pain causes me to see everything as ruined and distorted — hence my unending surprise when I do see my photographs uploaded on to the screen. “Who’s life IS that? Certainly not mine!”
I am not fine. I am in pain. And I am sick of being strong today. I just can’t.
Sorry. I am going to let myself hide, let myself cry, and
just keep trying to photograph myself onto another quantum plane. Lord knows this one is feeling mighty sucky today.
SO THERE YOU HAVE IT. The truth comes out. If people run from me now, as I expect they may, I will smile in recognition of the fact that when you laugh, the world laughs with you.
And when you cry, you surely cry alone.
I have my paints. I have my books. I have my son.
I have God. At least I thought I did.
I am beginning to wonder.”
November 23, 2012. 9:20:48 P.M. EST
ALLES IN ORDNUNG. I am A-otay, Buckwheat.
Âllo, Herr FIRE???
Was ist das?
Who is laughing now?
The Original NYC COCKROACH — unkillable.
Janice J. Cunningham
is the “IRREVERSIBLE TRACHEOSTOMY”, according to three out of four ENT doctors.
First , I was on two respiratory machines for a year and a half and could barely leave the house, let alone take William to the park, for fear of suffocation.They said I would need a trach tube in my neck for life. When THAT came out last October, they said this hole could never be closed, and I would never be able to swim again or I would drown instantly.
I will be swimming in a week or so.
This is a good thing.
The verdict today @ Cleveland Clinic, by Dr. Paul Bryson the Great:
At 9 a.m. EST Tuesday, June 26, 2012, Dr. Bryson is permanently closing the “irreversible” tracheostomy hole that has defined/defaced my throat for almost three years now.
Permanently, as in, forever.
Permanently, as in, I can again wear my beautiful Hepburn-esque double strand of pearls.
Permanently, as in, I will be teaching my three-year-old son, William, to swim underwater in about three weeks.
Then, onward and upward to the HIGHEST DIVING BOARD I CAN FIND! Somersaults, back dives, swan dives, CANNONBALLS!!!Going underwater and staying there for as long as possible in a tub full of sea salt. BRITISH VIRGIN ISLANDS! Tortola, Hawaii, the Keys, California coast, St. Barth’s. Mexico. Ile-de-France. All, someday, i pray, with my son by my side.
My dreams and my faith that dreams indeed, come true.
Manifestation now happening. Must believe. Failure no longer an option. As if it ever was?
In my mind’s eye, I am already hurling myself into the sea at Main Beach, Maidstone, Georgica, Ditch, Toilet Bowl, Turtles, and,
most importantly and poignantly of all, TERRACE.
At Terrace, this I will do with the utmost glee and joie de vivre — to honor my long-departed beach buddy, Alexander Lowenstein.
(I know your tanned 21-year old face is smiling that big blinding grin at me, wherever you are. And that wherever you are is someplace “TOTALLY AWESOME, DUUUUUDE!”)
This I will cherish to seize the rest of my days here on this earthly plane. This I will do to make up for the days you lost by leaving us too soon, on a 747 at age 21.
Not a day goes by that I do not think of you. And laugh.
Thank you for teaching me more from a beach chair then I ever learned at school.
R.I.P. Alexi. We love you…like you loved us, if that is at all possible. You ARE love. Can you hear me?
I miss you. Like nuts. Still.
And MILLE GRAZIE from the bottom of my Sicilian heart TO ALL MY FRIENDS for holding my hand through these past horrific three years of
*outliving a purported diagnosis of “TERMINAL” (at least it got me out of my pinstriped suits and DEVIL WEARS PRADA life!)
*being pregnant alone,
*surviving two comas,
*re-learning how to walk, talk, eat, and breathe,
*living on a respirator,
*getting OFF said respirator,
*doing my best under dire circumstances to raise my son William as a single mama (WITH TONS of Help, mind you. OMG. GRATITUDE)
to be the pure love and light that he is,
*and um, er…CATCHING ON FIRE from the waist up five months ago.
PHEW!!! My, what a long, strange trip it’s been. And I would do it all again. I have learned much, been humbled, and am stronger than I ever deemed humanly possible.
I have discovered something called RADICAL ACCEPTANCE.
SUFFERING IS AN OPTION.
HAPPINESS IS A CHOICE.
I am so happy. Every day that I am breathing is a good day.
No one can take this away from me.
LIVE LIFE WHILE YOU ARE HERE! Please, please.
I have seen the face of Death three times now.
DON’T go there.
Unless, of course, your time here is done.
Then, go to the light. I did.
It is warm and lovely and tempting and people you know are there calling and reaching out for you, but
you cannot change your mind should you forget to
say to someone here,
“i love you.”
i love you.
i love you. i have always loved you. i will always love you.
Hey. I LOVE YOU! Thiiiiiiiiiissssss much!
Always, always in love. Be always in love.
Be always in love, and always in joy. This, you can never buy.
The present. Forget the past after it has taught you, however harshly.
You may get burned very badly if you do not listen carefully …
Listen. And then grow.